Today is the twelfth day Magnus has been in the hospital. On the one hand it feels like it has been forever. I feel like it's been so long that I don't even remember our normal home routine. On the other hand the days fly by with treatments, procedures, feedings, therapy, tests, and nurses and doctors coming in and out of our room all the live long day. I thought I would have plenty of time to do homework and keep this blog updated while staying in the hospital, but Andy and I are exhausted and every waking moment is spent trying to keep Magnus happy and occupied.
I cannot wait to go home. But at the same time I'm scared for what will come next. Like I said, all we do is try to keep Magnus content. He needs help with everything. He can't even walk on his own yet. His motor skills were greatly affected by the surgery. But when we go home the next stage of this journey will begin. And i am not looking forward to having a little boy who is miserable and exhausted and sick all of the time because of radiation therapy.
Once we get home I want to update more on our stay. Magnus had another surgery yesterday because his drain just wasn't cutting it anymore and he needed something more permanent. Disappointing, but I am glad that something can be done at least. I am hoping (maybe it is a completely false hope, but I am trying for optimism here) that life will calm down just a bit. Andy dropped all of his classes this semester in an attempt to calm our life down a little. I have cut down to 2 days of work a week. The older 4 are in school and while Magnus is having his treatment every day for the next 6 weeks I will be able to study since he will be sedated. I have a hope that we will be blessed to feel the calm after the storm.
I am so thankful for my testimony of my Savior, Jesus Christ. I have felt His calming presence so many times over the last few weeks. I would not have been able to get through this time without my faith. I am so thankful for wonderful, thoughtful people who don't ask and just do. It feels so good to know Magnus is loved and prayed for by hundreds. It feels so good to know our family is taken care of. Thank you, my friends.
5 comments:
Oh, Sarah! I wish we lived closer so there was something we could do. I'm glad you're so close to family out there and lots of good help.
I love you and we are praying for you to have strength.
Sarah. My love and prayers are with you. I keep watching for the updates. I am grateful too they were able to put in a permanent drain. I am sorry for all that you are going through and pray that you will be supported in your time of need.
I do hope you get some time to focus and deal with everything else in your life. You're such a great mom and an amazing person. I'm grateful for your testimony. Love ya!
Came across your blog, just want you to know that my family is praying for your tough little guy and all of the rest of you. I believe strongly inthe power of prayers. I know our Heavenly Father hears them and will do what is best for your family. Hang in there!!!
I thought I'd left a comment and didn't. I am so thankful for your strength and testimony. What a difficult thing. I keep praying for you and checking for updates.
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