I went to see my Endocrinologist today. I like her a lot, she is very informative and spent a lot of time with me. I was very overwhelmed with all the information she gave me. Basically she explained to me that she wasn't sure what the graying area is on my pituitary gland. She said it could either be a cyst or an adnoma (sp?) and that I will continue with some medication (and she switched me from the one I am currently on that makes me SO sick to one that might still make me sick, but shouldn't be as bad) that should regulate my hormones and hopefully shrink whatever it is that is growing in there. I will do a repeat MRI to make sure it is not growing larger and that is in fact shrinking. If it isn't, they will most likely have to perform surgery to remove it.
She went over my health record and also asked me about a million questions. She was curious about my ankylosing spondolitis because apparently (I didn't know this) once you have an autoimmune disease, your body is susceptible to creating more within you. Great news, right? She checked my neck (where my thyroid is) and found a small goiter. I'm a little freaked out about that because it just seems so nasty to me (I thought only old people got goiters...?? Seriously, I am grossed out by myself), but she did an ultrasound on it and found that it is very small and with medication it will shrink also. She thinks I may have hyperthyroidism (which is another autoimmune disorder), for which I will also have to take medication.
She sent me to the lab for them to take tons of blood to test for every other possible thing I may have and just so she can know for certain everything we're dealing with. They also gave me a 24hour urine kit to do at home and also a saliva kit to do at home as well. I will have to go back to the lab about every other month for about a year to make sure my prolactin levels are going down as well.
Whew! You got all that? So, pretty much for now, we really know nothing yet. She told me they would call me with all of the results and to have a follow-up appointment to see where we go from there. I am overwhelmed. I am sick and tired of taking medication, but I know I need to get used to it, because I'll have to take it the rest of my life. I am so grateful to everyone who has helped me with my kids, brought me dinner, called to see how I'm doing, and just been my friend or a listening ear. I have such a wonderful support system for which I would go into despair without- my mom has been the best. I'm so grateful for my wonderful husband, who the other night told me that we would do whatever it took to find out everything we can so I can feel better. He's amazing. The doctor was even surprised that he came with me today. He always does, and I don't even have to ask him to. I love him.
So, until next time when I find out more. Prayers are greatly appreciated. They work. Thanks everyone!